About Us

The Story Behind Friedreich’s Fighters

All members of the Friedreich’s Fighters are volunteers that are connected by one person that was diagnosed with Friedreich’s Ataxia. Greg Seguin is that individual and it is because of his fierce determination that inspired all of us to join him in the fight against this disease. In facing such a life- altering diagnosis, we were compelled to act as we realized there is a profound source of strength that can come from working together. It is with this same feeling of wanting to do more that led Greg to be the driving force of our team to help other people that are dealing with FA.

To learn more about Greg Seguin and his journey, check out the dedicated Faces of FA tab on this website.

The Faces Of F.A.

“Alone we can do so little, together we can do so much.” – Helen Keller.

looking ahead…not behind

Our Vision

To create a compassionate community that recognizes the needs of those living with Friedreich’s Ataxia and responds with awareness, support, and collective action.

Learn More About Friedreich’s Ataxia

from our hearts…

Our Values

At our core, we are guided by unwavering values that reflect our deep commitment to those affected by Friedreich’s Ataxia. By standing by these values, we show support and respect to those affected.

Compassion

We lead with empathy, recognizing the unique challenges of this condition and to remind us of our shared humanity.

Dignity

We honour the worth of every person by treating them with respect, empowering their choices, and supporting their right to live with pride and purpose.

Transparency

We are clear, honest, and accountable in everything we do.

Community

We believe in the strength of connection recognizing that real change begins when people come together for a shared purpose and a compassionate heart.

Hope

We believe hope is a powerful force that fuels the courage to keep moving forward, inspires optimism to feel joy, and allows individuals to dream beyond their diagnosis.

Commitment

We are deeply rooted in the promise to serve others with care, integrity, and purpose to reflect our belief that making an impact requires dedication, not just intention.